Using Palliative Care in Progressive Neuromuscular Disease to Maximize Quality of Life - 07/11/12
, Nanette C. Joyce, DO a, Allison L. Abresch, DO c, Amanda E. Smith, BS d, Gregg K. VandeKeift, MD, MA b
Corresponding author. PO Box 1019, Centralia, WA 98531.Riassunto |
This article discusses the role of palliative care in the treatment pathway of patients with progressive neuromuscular disease (NDM), including amyotrophic lateral sclerosis and Duchenne muscular dystrophy (DMD). People with severe NMDs like DMD are now living much longer, well in to adulthood. This makes them suitable for the medical model of palliative care. Yet palliative medicine is a new area, especially for “adults” with DMD. Strategies for identifying the most effective modalities to alleviate suffering in patients with an NMD receiving palliative services and creating best practice standards in pain and symptom management for this patient population are discussed.
Il testo completo di questo articolo è disponibile in PDF.Keywords : Neuromuscular disease, Palliative care, Chronic pain, Burden of disease, Quality of life, Muscular dystrophy
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| This research was supported by the National Institute for Disability Rehabilitation Research (grant H133B0900001). The authors have nothing to disclose. |
Vol 23 - N° 4
P. 903-909 - Novembre 2012 Ritorno al numero
Articolo precedente
- Chronic Pain in Neuromuscular Disease : Pain Site and Intensity Differentially Impacts Function
- Jordi Miró, Kevin J. Gertz, Gregory T. Carter, Mark P. Jensen
- Index
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