Epidermolysis Bullosa in France: Management in the National Reference Center for Genodermatosis - 05/08/11
Doi : 10.1016/j.det.2010.02.007
Christine Bodemer, MD, PhD a, b, c, ⁎ 
MAGEC-Necker Team1
a Department of Dermatology, Necker Enfants Malades Hospital, 149 Rue de Sèvres, APHP Paris 75015, France
b University René Descartes, Paris V, France
c Institut National de la Santé et de la Recherche Médicale U781, Paris, France
Corresponding author. Department of Dermatology, Necker Enfants Malades Hospital, 149 Rue de Sèvres, APHP Paris 75015, France.Resumen |
For more than 20 years, the department of dermatology in the Necker Enfants Malades Hospital (Paris) has been organizing the coordination of an epidermolysis bullosa–specific multidisciplinary management. The French Ministry of Health distinguished this hospital as a reference center for rare diseases. MAGEC-Necker now aims to offer the best medical and social management of epidermolysis bullosa.
El texto completo de este artículo está disponible en PDF.Keywords : National reference center, MAGEC, Genodermatosis, Rare diseases, Epidermolysis bullosa, Genodermatosis database, CEMARA
© 2010
Elsevier Inc. Reservados todos los derechos.
Vol 28 - N° 2
P. 401-403 - avril 2010 Regresar al número
Artículo precedente
- Care of Epidermolysis Bullosa in Ireland
- Rosemarie Watson
- Epidermolysis Bullosa Care in Germany
- Leena Bruckner-Tuderman
Bienvenido a EM-consulte, la referencia de los profesionales de la salud.
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