Social and medical support initiatives in vascular liver diseases in France, from child to adult - 03/09/20
Doi : 10.1016/j.clinre.2020.03.002
Plessier Aurélie a, b, c, ⁎ 
, Maxime Gasperment a, Dominique Debray b, d, Emilie Le Beux b, Corinne Brault a, b, Isabelle Ollivier-Hourmand b, e, Danielle Dutheil b, f, Anne Leclercq a, Julie Devictor a, Virginia Hernández-Gea g, Rautou Pierre Emmanuel a, b, c, Odile Goria a, b, h
, Maxime Gasperment a, Dominique Debray b, d, Emilie Le Beux b, Corinne Brault a, b, Isabelle Ollivier-Hourmand b, e, Danielle Dutheil b, f, Anne Leclercq a, Julie Devictor a, Virginia Hernández-Gea g, Rautou Pierre Emmanuel a, b, c, Odile Goria a, b, h a Department of Hepatology and reference centre of vascular liver diseases, Beaujon Hospital, AP–HP, 100, boulevard du Généra-Leclerc, 92118 Clichy, France
b French Network for Rare Liver Diseases (FILFOIE), Saint-Antoine Hospital, AP–HP, 184, rue du Faubourg-Saint-Antoine, 75012 Paris, France
c Reference center of vascular liver diseases, European Reference Network (ERN) “Rare-Liver”, Hamburg, Germany
d Pediatric Hepatology Unit, hôpital Necker - enfants maladies, AP–HP, 149, rue de Sèvres, 75743 Paris cedex 15, France
e Department of Gastroenterology and Hepatology, Côte de la Nacre Hospital, University Hospital of Caen, avenue de la Côte-de-Nacre, 14033 Caen cedex 9, France
f Department of Hepatology, Association of patients with vascular liver diseases (AMVF), Beaujon Hospital, 100, boulevard du Général-Leclerc, 92118 Clichy, France
g Barcelona Hepatic Hemodynamic Laboratory, Liver Unit, Hospital Clínic, Institut de Investigacions Biomèdiques August Pi i Sunyer (IDIBAPS), University of Barcelona, Barcelona. Centro de Investigación Biomédica en Red Enfermedades Hepáticas y Digestivas (CIBERehd). Health Care Provider of the European Reference Network on Rare Liver Disorders (ERN-Liver), Spain
h Department of Gastroenterology and Hepatology, Charles Nicolle Hospital, University Hospital Of Rouen, 1, rue de Germont, 76031 Rouen cedex, France
⁎Corresponding author at: Department of Hepatology and reference centre of vascular liver diseases, Beaujon Hospital, AP–HP, 100, boulevard du Généra-Leclerc, 92118 Clichy, France.Department of Hepatology and reference centre of vascular liver diseases, Beaujon Hospital, AP–HP100, boulevard du Généra-LeclercClichy92118France
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Keywords : Patient association, Transition, Therapeutic patient education, Coordinating nurse, Advanced practice nurse, Social support, Psychological support, Vascular liver disease
Abbreviations : AERAS, AP–HP, HCV, NAFLD, PNH, TPE
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© 2020
Publicado por Elsevier Masson SAS.
Vol 44 - N° 4
P. 466-470 - septembre 2020 Regresar al número
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