^a Department of Gastroenterology and Hepatology, Robert Debré Hospital, University Hospital of Reims, avenue du Général-Koening, 51092 Reims cedex, France 

^b Department of Pediatric Hepatology, Bicêtre Hospital, AP–HP, 78, rue du Général-Leclerc, 94270 Le Kremlin-Bicêtre, France 

^c Department of Pediatric Radiology, Bicêtre Hospital, AP–HP, 78, rue du Général-Leclerc, 94270 Le Kremlin-Bicêtre, France 

^d Department of Gastroenterology, Hospital of French Polynesia, BP 1640 Papeete, 98 713 Tahiti, French Polynesia 

^e Department of Hepatology and reference center of vascular liver diseases, Beaujon Hospital, AP–HP, 100, boulevard du Général-Leclerc, 92118 Clichy, France 

^f Department of Internal Medicine, Foch Hospital, 40, rue Worth, 92150 Suresnes, France 

^g Department of Pediatric Hepatology, Hôpital Necker – enfants maladies, AP–HP, 149, rue de Sèvres, 75743 Paris cedex 15, France 

^h Barcelona Hepatic Hemodynamic Laboratory, Liver Unit, Hospital Clínic, Institut de Investigacions Biomèdiques August Pi i Sunyer (IDIBAPS), University of Barcelona, Barcelona. Centro de Investigación Biomédica en Red Enfermedades Hepáticas y Digestivas (CIBERehd). Health Care Provider of the European Reference Network onRare Liver Disorders (ERN-Liver), Spain 

ⁱ Department of Hepatology, Association of patients with vascular liver diseases (AMVF), Beaujon Hospital, 100, boulevard du Général-Leclerc, 92118 Clichy, France 

^j Department of Gastroenterology and Hepatology, Rangueil Hospital, University Hospital of Toulouse, 1, avenue du Professeur-Jean-Poulhès, 31400 Toulouse, France 

^k French Network for Rare Liver Diseases FILFOIE, Saint-Antoine Hospital, AP–HP, 184, rue du Faubourg-Saint-Antoine, 75012 Paris, France 

^l Reference center of vascular liver diseases, European Reference Network (ERN) “Rare-Liver”, Beaujon Hospital, Clichy, France