Christine Silvain a, ⁎ , Thierry Thévenot b, Isabelle Colle c, Valérie Vilgrain d, l, Sophie Dupuis-Girod e, Elisabetta Buscarini f, Dominique Valla g, l, m, Sophie Hillaire h, Danielle Dutheil i, l, Olivier Sitbon j, Christophe Bureau k, l, Aurélie Plessier g, l, m
a Department of Gastroenterology and Hepatology, University Hospital of Poitiers, 2, rue de la Milétrie - CS 90577, 86021 Poitiers, France
b Department of Hepatology and intensive digestive care, Jean Minjoz Hospital, 3, boulevard Alexandre Fleming, 25030 Besançon, France
c Department of Gastroenterology and Hepatology, Algemeen Stedelijk Ziekenhuis ASZ campus Aalst, 9300 Aalst (Alost), Belgium
d Department of radiology, Beaujon Hospital, AP-HP, 100, boulevard du Général Leclerc, 92118 Clichy, France
e Hospices Civils de Lyon, Department of genetic and Reference Center for Hereditary Hemorrhagic Telangiectasia, -Hôpital Femme Mère Enfant, 59, boulevard Pinel, 69677 Bron, France
f Department of Gastroenterology and Reference Center for Hereditary Hemorrhagic Telangiectasia, Maggiore Hospital, ASST Crema, Largo Ugo Dossena, 2, 26013 Crema CR, Italy
g Department of Hepatology and reference center of vascular liver diseases, Beaujon Hospital, AP-HP, 100, boulevard du Général Leclerc, 92118 Clichy, France
h Department of Internal Medicine, Foch Hospital, 40, rue Worth, 92150 Suresnes, France
i Association of patients with vascular liver diseases (AMVF), Beaujon Hospital, Department of Hepatology, 100, boulevard du Général Leclerc, 92118 Clichy, France
j Université Paris–Saclay, AP-HP, INSERM UMR_S 999, Service de Pneumologie et Soins Intensifs Respiratoires, Hôpital Bicêtre, Le Kremlin Bicêtre, France
k Department of Gastroenterology and Hepatology, Rangueil Hospital, University Hospital of Toulouse, 1, avenue du Professeur Jean Poulhès, 31400 Toulouse, France
l French Network for Rare Liver Diseases (FILFOIE), Saint-Antoine Hospital, APHP, 184, rue du Faubourg Saint-Antoine, 75012 Paris, France
m Reference center of vascular liver diseases, European Reference Network (ERN) Rare-Liver