Juliette Soret a, d, ⁎
, Dominique Debray b, d, Flore Sicre de Fontbrune e, Jean-Jacques Kiladjian a, d, David Saadoun f, Régis Peffault de Latour e, Dominique Valla d, g, h, Virginia Hernandez-Gea i, Sophie Hillaire j, Danielle Dutheil d, k, Aurélie Plessier d, g, h, Christophe Bureau d, l, Emmanuelle De Raucourt c, d, h
a Center of Clinical Investigation, Saint-Louis Hospital APHP, 1, avenue Claude Vellefaux, 75010 Paris, France
b Pediatric hepatology Unit, Necker Hospital APHP, 149, rue de Sèvres, 75015 Paris, France
c Department of Laboratory Hematology, Beaujon Hospital AP-HP, 100, boulevard du Général Leclerc, 92118 Clichy, France
d French Network for Rare Liver Diseases FILFOIE, Saint-Antoine Hospital AP-HP, 184, rue du Faubourg Saint-Antoine, 75012 Paris, France
e Service d’hématologie, French referral centre for Aplastic anemia and PNH and filière de santé maladies rares immunohématologiques, Saint-Louis Hospital APHP, ERN eurobloodnet, 75010 Paris, France
f Departement of Internal Medecine, Médecine interne, La Pitié Salpêtrière Hospital APHP, CMR maladies auto_immunes systémiques rares ; CMR maladies auto inflammatoires et amylose, ERN RITA, 47-83, boulevard de l’Hôpital, 75651 Paris, France
g Department of Hepatology, Beaujon Hospital AP-HP, 100, boulevard du Général Leclerc, 92118 Clichy, France
h Reference center of vascular liver diseases, European Reference Network (ERN) Rare-Liver
i Barcelona Hepatic Hemodynamic Unit, Liver Unit. IMDIM. CIBERehd, Hospital Clinic, Barcelona, Spain
j Department of Internal Medicine, Foch Hospital, 40, rue Worth, 92150 Suresnes, France
k Association of patients with vascular liver diseases (AMVF), Beaujon Hospital, Department of Hepatology, 100, boulevard du Général-Leclerc, 92118 Clichy, France
l Department of Gastroenterology and Hepatology, Rangueil Hospital, University Hospital of Toulouse, 1, avenue du Professeur Jean-Poulhès, 31400 Toulouse, France