Long Term Outcomes in Children with Congenital Heart Disease: National Health Interview Survey - 09/10/14

Doi : 10.1016/j.jpeds.2014.09.006

Hilda Razzaghi, PhD, MSPH ^1,^2,^⁎ , Matthew Oster, MD, MPH ^1,³, Jennita Reefhuis, PhD ¹
¹ National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA
² Oak Ridge Institute for Science and Education, Oak Ridge, TN
³ Children's Healthcare of Atlanta, Emory University School of Medicine, Atlanta, GA

^∗Reprint requests: Hilda Razzaghi, PhD, MSPH, Centers for Disease Control and Prevention, Mail Stop E86, 1600 Clifton Rd, Atlanta, GA 30333.

Sous presse. Épreuves corrigées par l'auteur. Disponible en ligne depuis le Thursday 09 October 2014

Abstract

Objective

To assess the extent of long-term morbidity in children with congenital heart disease (CHD).

Study design

We used data from the 1997-2011 National Health Interview Survey to study long-term outcomes in children aged 0-17 years with CHD. Parents were asked whether their child was diagnosed with CHD. We assessed for comorbidities, including autism/autism spectrum disorders; healthcare utilization, including number of emergency room visits; and daily life aspects, including number of days of school missed. These outcomes were compared between children with and without reported CHD using ORs and χ² statistics.

Results

The study included 420 children with reported CHD and 180 048 children without CHD, with no significant between-group differences in age and sex. The odds of reporting worse health and more than 10 days of school/daycare missed in the previous year were 3 times higher for the children with CHD compared with those without CHD. Children aged 2-17 with CHD were more likely than those without CHD to have had a diagnosis of autism spectrum disorder (crude OR, 4.6; 95% CI, 1.9-11.0) or intellectual disability (Crude OR, 9.1; 95% CI, 5.4-15.4). The rates of emergency room, home, and doctors' office visits were significantly higher in the children with CHD.

Conclusion

Reported adverse outcomes were more prevalent in the children with CHD. Our findings, particularly those regarding neurodevelopmental outcomes, may be helpful for parents, healthcare providers, and others in assessing the specific needs of children and teenagers with CHD.

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Keyword : ADHD, ADD, CHD, NHIS, SC

Plan

H.R. was supported by an appointment to the Research Participation program for the Centers for Disease Control and Prevention administered by the Oak Ridge Institute for Science and Education through an agreement between the Department of Energy and Centers for Disease Control and Prevention. The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of Centers for Disease Control and Prevention. The authors declare no conflicts of interest.