Bereaved Parents' Intentions and Suggestions about Research Autopsies in Children with Lethal Brain Tumors - 23/07/13
Abstract |
Objective |
To determine bereaved parents' perceptions about participating in autopsy-related research and to elucidate their suggestions about how to improve the process.
Study design |
A prospective multicenter study was conducted to collect tumor tissue by autopsy of children with diffuse intrinsic pontine glioma. In the study, parents completed a questionnaire after their child's death to describe the purpose for, hopes (ie, desired outcomes of), and regrets about their participation in autopsy-related research. Parents also suggested ways to improve autopsy-related discussions. A semantic content analytic method was used to analyze responses and identify themes within and across parent responses.
Results |
Responses from 33 parents indicated that the main reasons for participating in this study were to advance medical knowledge or find a cure, a desire to help others, and choosing as their child would want. Parents hoped that participation would help others or help find a cure as well as provide closure. Providing education/anticipatory guidance and having a trusted professional sensitively broach the topic of autopsy were suggestions to improve autopsy discussions. All parents felt that study participation was the right decision, and none regretted it; 91% agreed that they would make the choice again.
Conclusion |
Because autopsy can help advance scientific understanding of the disease itself and because parents reported having no regret and even cited benefits, researchers should be encouraged to continue autopsy-related research. Parental perceptions about such studies should be evaluated in other types of pediatric diseases.
Le texte complet de cet article est disponible en PDF.Keyword : DIPG
Plan
Supported by the Cancer Center (5P30CA021765-32), Tyler's Treehouse Foundation, and the American Lebanese Syrian Associated Charities. The authors declare no conflicts of interest. |
Vol 163 - N° 2
P. 581-586 - août 2013 Retour au numéroBienvenue sur EM-consulte, la référence des professionnels de santé.
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