Behavioral and Emotional Outcomes in Children with Congenital Heart Disease: Effects of Disease Severity, Family Life Stress, Disease-Related Chronic Stress, and Psychosocial Adaptation - 22/08/23
, Jo Wray, PhD 2, Asad A. Qadir, MD 3, Michelle M. Ernst, PhD 4, Katherine Brown, MD, MPH 2, Rodney Franklin, MD 5, Gil Wernovsky, MD 6, Bradley S. Marino, MD, MPP, MSCE, MBA 7Abstract |
Objective |
To evaluate whether effects of congenital heart disease (CHD) severity and family life stress on behavioral and emotional functioning are mediated by disease-related chronic stress and psychosocial adaptation.
Study design |
A cross-sectional analysis of the Pediatric Cardiac Quality of Life Inventory Testing Study was performed. Relationships between CHD severity (comprising 3 groups: mild heart disease, moderate biventricular disease, and single ventricle) and family life stress, on patient- and parent disease-related chronic stress, psychosocial adaptation, and behavioral–emotional outcomes were assessed using structural equation modeling. Patient and parent models were reported separately.
Results |
There were 981 patient–parent dyads: 22% had mild heart disease, 63% biventricular, and 15% single ventricle; 19% of families reported moderate to major family life stress. Path models revealed that CHD severity and family life stress were mediated by disease-related chronic stress and psychosocial adaptation factors (R2 = 0.18-0.24 for patient outcomes and R2 = 0.33-0.34 for parent outcomes, P < .001, respectively).
Conclusions |
The effects of greater CHD severity and family life stress on behavioral–emotional outcomes were mediated by worse disease-related chronic stress and psychosocial adaptation factors. Both disease-related chronic stress and psychosocial adaptation factors may be targets for interventions to improve behavioral and emotional outcomes.
Le texte complet de cet article est disponible en PDF.Keywords : behavior problems, congenital heart disease, Parent Coping, psychosocial adaptation
Abbreviations : BV, CBCL, CHD, HRQOL, PCQLI, PIP, PTDS, SEM, SES, SV, YSR
Plan
| Presented at the American Academy of Pediatrics annual meeting, October 25-29, 2019, New Orleans, Louisiana. |
Vol 259
Article 113450- août 2023 Retour au numéro
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