Behavioral and Emotional Outcomes in Children with Congenital Heart Disease: Effects of Disease Severity, Family Life Stress, Disease-Related Chronic Stress, and Psychosocial Adaptation - 22/08/23
Abstract |
Objective |
To evaluate whether effects of congenital heart disease (CHD) severity and family life stress on behavioral and emotional functioning are mediated by disease-related chronic stress and psychosocial adaptation.
Study design |
A cross-sectional analysis of the Pediatric Cardiac Quality of Life Inventory Testing Study was performed. Relationships between CHD severity (comprising 3 groups: mild heart disease, moderate biventricular disease, and single ventricle) and family life stress, on patient- and parent disease-related chronic stress, psychosocial adaptation, and behavioral–emotional outcomes were assessed using structural equation modeling. Patient and parent models were reported separately.
Results |
There were 981 patient–parent dyads: 22% had mild heart disease, 63% biventricular, and 15% single ventricle; 19% of families reported moderate to major family life stress. Path models revealed that CHD severity and family life stress were mediated by disease-related chronic stress and psychosocial adaptation factors (R2 = 0.18-0.24 for patient outcomes and R2 = 0.33-0.34 for parent outcomes, P < .001, respectively).
Conclusions |
The effects of greater CHD severity and family life stress on behavioral–emotional outcomes were mediated by worse disease-related chronic stress and psychosocial adaptation factors. Both disease-related chronic stress and psychosocial adaptation factors may be targets for interventions to improve behavioral and emotional outcomes.
Le texte complet de cet article est disponible en PDF.Keywords : behavior problems, congenital heart disease, Parent Coping, psychosocial adaptation
Abbreviations : BV, CBCL, CHD, HRQOL, PCQLI, PIP, PTDS, SEM, SES, SV, YSR
Plan
Presented at the American Academy of Pediatrics annual meeting, October 25-29, 2019, New Orleans, Louisiana. |
Vol 259
Article 113450- août 2023 Retour au numéroBienvenue sur EM-consulte, la référence des professionnels de santé.
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