Decision making and informed consent in uterus transplant recipients: A mixed-methods study of the Dallas uterus transplant study (DUETS) participants - 16/09/21
, Liza Johannesson a, b, Monica Sok b, Ann Marie Warren c, Elisa J. Gordon d, Giuliano Testa aAbstract |
Background |
Uterus transplantation (Utx) has achieved clinical success but little is known about motivations and experiences of UTx recipients.
Methods |
We conducted semi-structured interviews with 20 UTx recipients in addition to collecting quantitative demographic and clinical data. Closed-ended interview questions were treated as categorical variables. Thematic analysis was performed on qualitative data. Bivariate analysis tested associations between categorical variables.
Results |
Themes that emerged included: the decision to pursue UTx is a process, primary motivations for UTx are specific to the experience of gestation, and alternative options did not offer the same value as UTx. There was no association between disease etiology, clinical status, or perception of UTx risk with information needs or donor preference.
Conclusions |
Our findings suggest that UTx is a unique treatment option that some women with AUFI find preferable to adoption and surrogacy and, as such, should be discussed as a parenthood option with women diagnosed with AUFI.
Le texte complet de cet article est disponible en PDF.Highlights |
• | Semi-structured interviews explored motivations and experiences of uterus transplant recipients. |
• | Primary motivations for uterus transplant are specific to experiencing gestation. |
• | Other options for motherhood, surrogacy and adoption, do not offer the same value. |
• | Likelihood of success was the primary factor in considerations of donor type. |
• | All participants were satisfied with the informed consent process. |
Keywords : Informed consent, Ethics, Uterus transplantation, Reproductive autonomy
Plan
Vol 222 - N° 4
P. 819-824 - octobre 2021 Retour au numéro
Article précédent
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