A Versatile Big Data Health System for Australia: Driving Improvements in Cardiovascular Health - 02/09/21

Doi : 10.1016/j.hlc.2021.04.023

Ellie Paige, PhD ^a, Kerry Doyle, BA, PSM ^b,^c,^d, Louisa Jorm, PhD ^e, Emily Banks, MBBS, PhD ^a,^f, Meng-Ping Hsu, PhD ^b, Lee Nedkoff, PhD ^g, Tom Briffa, PhD ^g, Dominique A. Cadilhac, PhD ^h,ⁱ, Ray Mahoney, HlthScD ^j, Johan W. Verjans, MD, PhD ^k,^l,^m, Girish Dwivedi, MD, PhD ^g,^n,^o, Michael Inouye, PhD ^p,^q,^r, Gemma A. Figtree, MBBS, PhD ^b,^s,^⁎
^a National Centre for Epidemiology and Population Health, The Australian National University, Canberra, ACT, Australia
^b Australian Cardiovascular Alliance, Chittaway Bay, NSW, Australia
^c National Institute of Complementary Medicines, Sydney, NSW, Australia
^d Ausbiotech, Melbourne, Vic, Australia
^e Centre for Big Data Research in Health, University of New South Wales, Sydney, NSW, Australia
^f Sax Institute, Sydney, NSW, Australia
^g School of Population and Global Health, The University of Western Australia, Perth, WA, Australia
^h Stroke and Ageing Research Group, Department of Medicine, School of Clinical Sciences, Monash University, Melbourne, Vic, Australia
ⁱ Stroke Theme, the Florey Institute of Neuroscience and Mental Health, the University of Melbourne, Melbourne, Vic, Australia
^j Australian e Health Research Centre, CSIRO, Brisbane, Qld, Australia
^k Australian Institute for Machine Learning/Adelaide Medical School, University of Adelaide, Adelaide, SA, Australia
^l Vascular Research Centre, South Australian Health and Medical Research Institute, Adelaide, SA, Australia
^m Royal Adelaide Hospital, Adelaide, SA, Australia
ⁿ Fiona Stanley Hospital, Perth, WA, Australia
^o Harry Perkins Institute of Medical Research, The University of Western Australia, Perth, WA, Australia
^p Cambridge Baker Systems Genomics Initiative, Baker Heart and Diabetes Institute, Melbourne, Vic, Australia
^q Cambridge Baker Systems Genomics Initiative, Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK
^r The Alan Turing Institute, London, UK
^s Kolling Institute of Medical Research, The University of Sydney, Sydney, NSW, Australia

^∗Corresponding author at: University of Sydney, Level 12, Kolling Institute of Medical Research, 10 Westbourne Street, St Leonards, 2065, NSW, AustraliaUniversity of SydneyLevel 12, Kolling Institute of Medical Research10 Westbourne StreetSt LeonardsNSW2065Australia

Abstract

Cardiovascular diseases (CVD) are leading causes of death and morbidity in Australia and worldwide. Despite improvements in treatment, there remain large gaps in our understanding to prevent, treat and manage CVD events and associated morbidities. This article lays out a vision for enhancing CVD research in Australia through the development of a Big Data system, bringing together the multitude of rich administrative and health datasets available. The article describes the different types of Big Data available for CVD research in Australia and presents an overview of the potential benefits of a Big Data system for CVD research and some of the major challenges in establishing the system for Australia. The steps for progressing this vision are outlined.

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Keywords : Big data, Datasets, Cardiovascular disease, National platform

Plan

A New Vision to Tackle Our Challenges in Cardiovascular and Cerebrovascular Health

What Is ‘Big Data’ as it Relates to Health Care and Population Outcomes?

Potential Benefits of Bringing Together Big Data for Health Research in Australia

An Overview of Challenges of Using Big Data in Australia

‘Big Data’ to Address ‘Big Questions’ in CVD Research

Clinical Research

Evidence-Based Care and Prevention

Population Health and Outcomes Research

Inequalities in Health

Cardiac and Stroke Treatments

The Way Forward—Development and Implementation of a Big Data Roadmap

Next Steps in the Path to a Big Data System for CVD

Conclusion

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Vol 30 - N° 10

P. 1467-1476 - octobre 2021 Retour au numéro

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A Versatile Big Data Health System for Australia: Driving Improvements in Cardiovascular Health - 02/09/21

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