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SARS-CoV-2 infection and COVID-19: The lived experience and perceptions of patients in isolation and care in an Australian healthcare setting - 18/11/20

Doi : 10.1016/j.ajic.2020.08.032 
Ramon Z. Shaban, PhD a, b, c, d, , Shizar Nahidi, PhD a, b, Cristina Sotomayor-Castillo, PhD a, b, Cecilia Li, PhD a, b, Nicole Gilroy, MBBS c, Matthew V.N. O'Sullivan, PhD c, e, Tania C. Sorrell, PhD a, c, e, f, Elizabeth White, BN c, Kate Hackett, BN g, Shopna Bag, MBBS f, h
a Marie Bashir Institute for Infectious Diseases and Biosecurity, University of Sydney, Camperdown, NSW, Australia 
b Susan Wakil School of Nursing and Midwifery, Faculty of Medicine and Health, University of Sydney, Camperdown, NSW, Australia 
c Department of Infectious Diseases and Sexual Health, Division of Medicine and Cancer Services, Westmead Hospital, Western Sydney Local Health District, Westmead, NSW, Australia 
d Nursing, Midwifery and Clinical Governance Directorate, Western Sydney Local Health District, Westmead, NSW, Australia 
e Sydney Medical School, Faculty of Medicine and Health, University of Sydney, Camperdown, NSW, Australia 
f Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Westmead, NSW Australia 
g Westmead Hospital, Western Sydney Local Health District, Westmead, NSW, Australia 
h Public Health Unit, Centre for Population Health, Western Sydney Local Health District, North Parramatta, NSW, Australia 

Address correspondence to Ramon Z. Shaban, PhD, University of Sydney and Western Sydney Local Health District, Office 0.4.20, Westmead Institute for Medical Research, 176 Hawkesbury Rd, Westmead, NSW 2145, Australia.University of Sydney and Western Sydney Local Health District, 0.4.20, Westmead Institute for Medical Research176 Hawkesbury RdWestmeadNSW21645Australia

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Highlights

Source isolation and quarantine for infectious diseases is associated with a range of intended and unintended consequences.
Patients in isolation quarantine with SARS-CoV-2 and COVID-19 report a range of positive and negative intended and unintended consequences.
Personal planning, access to information, social and family resources, communication and the physical environment are significant mediators of the patient experience of isolation and quarantine.

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Résumé

Background

Isolation and quarantine are key measures in outbreak management and disease control. They are, however, associated with negative patient experiences and outcomes, including an adverse impact on mental health and lower quality of care due to limited interaction with healthcare workers. In this study, we explore the lived experience and perceptions of patients in isolation with COVID-19 in an Australian healthcare setting.

Methods

Using a phenomenological approach from a Heideggerian hermeneutical perspective, we conducted individual semistructured interviews with the first 11 COVID-19 patients admitted to a designated COVID-19 facility in Australia. Interviews were audiorecorded, transcribed verbatim, and imported into NVivo 12 for coding and analysis.

Results

Participants’ lived experience and perceptions of COVID-19 were represented by 5 themes: “Knowing about COVID-19,” “Planning for, and responding to, COVID-19,” “Being infected,” “Life in isolation and the room,” and “Post-discharge life.” Within these, participants conveyed both positive and negative lived experiences of infection, isolation, and illness. The contextual aspects of their social and physical environment together with their individual resources contributed to the framing of their planning for, and response to, the outbreak, and were important mediators in their experience.

Conclusions

Findings from this study provide a valuable insight into the lived experiences of patients with COVID-19, which reflect those of patients with other infectious diseases who require isolation.

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Key Words : Outbreak, Phenomenology, Quarantine, Pandemic, Disease control


Plan


 Conflicts of interest: Ramon Shaban is a member of the Editorial Board of the American Journal of Infection Control but had no role in the editorial or peer review process whatsoever. The authors report no other conflicts of interest relevant to this article.


© 2020  Association for Professionals in Infection Control and Epidemiology, Inc. Tous droits réservés.
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Vol 48 - N° 12

P. 1445-1450 - décembre 2020 Retour au numéro
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