From congenial paralysis to post-early brain injury developmental condition: Where does cerebral palsy actually stand? - 24/10/20

Highlights |
• | The concept of cerebral palsy (CP) has evolved over 2 centuries, with neuroscientific and social developmental theories, and was revolutionized by the International Classification of Functioning, Disability and Health framework. |
• | Early brain injury (EBI) stands as a seminal turning point of the individual's story. |
• | Post-EBI development is a new dimension of the developmental pathway in which the individual with EBI develops within his/her own environment. |
Abstract |
Cerebral palsy (CP), an umbrella term for a developmental motor disorder caused by early brain injury (EBI)/interference, remains debated. In this essay, we present a narrative, beginning with the original anatomical-clinical description of the so-called paralysie congéniale (congenial paralysis) by the French psychiatrist Jean-Baptiste Cazauvieilh. We then discuss how the concept has evolved over the last 2 centuries. We aim to illustrate these ideas with the biopsychosocial model of health, especially in light of the current neuroscientific and sociological knowledge of human development. We endeavour to integrate 3 connected but distinct entities: (1) the EBI as a seminal turning point of the individual's story; (2) the clinical findings we call CP, when motor impairment and activity limitation related to post-EBI (or other early non-progressive brain interference) appears, and; (3) a post-EBI developmental condition that encompasses the overall consequences of an EBI. This framework should guide individual, familial and collective care discussions and research strategies beyond the scope of CP.
Le texte complet de cet article est disponible en PDF.Keywords : Cerebral palsy, Narrative medicine, Early brain injury, International Classification of Functioning,, Disability and Health (ICF), Human development
Plan
Vol 63 - N° 5
P. 431-438 - octobre 2020 Retour au numéroBienvenue sur EM-consulte, la référence des professionnels de santé.