Health issues in polyhandicapped patients according to age: Results of a large French cross-sectional study - 27/07/20
, K. Baumstarck b, N. Khaldi-Cherif c, A. Felce d, M. Valkov a, C. Brisse e, A. Loundou b, P. Auquier b, T. Billette de Villemeur f, g, hthe French Polyhandicap Group1
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Abstract |
Introduction |
A better understanding of the natural course of the health status of patients with polyhandicap may optimize preventive and curative care management. From a large sample of patients aged from 3 to 25 years, we reported the description of their health status.
Methods |
This was an 18-month cross-sectional study including patients aged from 3 to 25 years with a combination of severe motor deficiency and profound intellectual impairment. The patients were recruited from 4 specialized rehabilitation centers, 9 residential facilities, and a pediatric/neurological department. The following data were collected: polyhandicap etiology, health status (impairments, comorbidities, and neurodevelopmental status), medical devices, and rehabilitation procedures.
Results |
A total of 545 patients were included (n=80 [3–5 years], n=166 [6–11 y], n=155 [12–17 y], and n=144 [18–25 y]). The etiology of polyhandicap was unknown for 11.5% of the cases. Behavioral disorders and (orthopedic and digestive) comorbidities were more frequent in the oldest age classes. The neurodevelopmental status of the patients was close to those of a 5- to 7-month-old child without progression across age. Gastrostomy was the most frequent device needed by the patients.
Discussion/Conclusion |
Early detection and management of impairments and comorbidities may improve the disease course of the patients.
Le texte complet de cet article est disponible en PDF.Keywords : Health status, Polyhandicap, Disability, Comorbidity, Mental retardation
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Vol 176 - N° 5
P. 370-379 - mai 2020 Retour au numéro
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