Outcome Assessment and Function in Cerebral Palsy - 22/11/19

Doi : 10.1016/j.pmr.2019.09.011

Jilda N. Vargus-Adams, MD, MSc ^a,^b,^c,^⁎
^a Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH, USA
^b Department of Neurology and Rehabilitation Medicine, University of Cincinnati College of Medicine, Cincinnati, OH, USA
^c Division of Pediatric Rehabilitation Medicine, Cincinnati Children’s Hospital Medical Center, 3333 Burnet Avenue, MLC-4009, Cincinnati, OH 45229-3039, USA

^∗Division of Pediatric Rehabilitation Medicine, Cincinnati Children’s Hospital Medical Center, 3333 Burnet Avenue, MLC-4009, Cincinnati, OH 45229-3039.Division of Pediatric Rehabilitation MedicineCincinnati Children’s Hospital Medical Center3333 Burnet AvenueMLC-4009CincinnatiOH45229-3039

Résumé

Care and research in childhood cerebral palsy (CP) continue to evolve. As our understanding of CP grows more nuanced, so grows our need to describe function, activities, challenges, adaptations of children with CP. In CP, robust means of measuring outcomes are vital to understanding utility of treatments. Research must accurately measure meaningful constructs of children with CP as a reliable ruler to establish if interventions produce useful effects. This article addresses the challenges of outcome measurement in CP, current status of outcome measurement in CP, and issues of understanding change in childhood CP.

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Keywords : Cerebral palsy, Function, Outcome measure, Outcomes, Disability