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Gaps and Factors Related to Receipt of Care within a Medical Home for Toddlers Born Preterm - 20/12/18

Doi : 10.1016/j.jpeds.2018.10.065 
Kelly M. Boone, MA 1, * , Mary Ann Nelin, MD 2, 3, Deena J. Chisolm, PhD 4, 5, 6, Sarah A. Keim, PhD, MA, MS 5, 7, 8
1 Schoenbaum Family Center and Crane Center for Early Childhood Research and Policy, The Ohio State University, Columbus, OH 
2 Nationwide Children's Hospital, Columbus, OH 
3 Division of Ambulatory Medicine, Department of Pediatrics, The Ohio State University College of Medicine, Columbus, OH 
4 Center for Innovation in Pediatric Practice, The Research Institute at Nationwide Children's Hospital, Columbus, OH 
5 Department of Pediatrics, College of Medicine, The Ohio State University, Columbus, OH 
6 Division of Health Services Management and Policy, College of Public Health, The Ohio State University, Columbus, OH 
7 Center for Biobehavioral Health, The Research Institute at Nationwide Children's Hospital, Columbus, OH 
8 Division of Epidemiology, College of Public Health, The Ohio State University; Columbus, OH 

*Reprint requests: Kelly M. Boone, MA, Schoenbaum Family Center and Crane Center for Early Childhood Research and Policy, The Ohio State University, 175 East 7th Ave, Columbus, OH 43201.Schoenbaum Family Center and Crane Center for Early Childhood Research and PolicyThe Ohio State University175 East 7th AveColumbusOH43201
Sous presse. Épreuves corrigées par l'auteur. Disponible en ligne depuis le Thursday 20 December 2018

Abstract

Objective

To characterize gaps and factors related to receipt of care within a medical home for toddlers born preterm.

Study design

Participants were 202 caregivers of children born at <35 weeks of gestation. At 10-16 months of corrected age, caregivers completed the National Survey of Children's Health (2011/2012) medical home module and a sociodemographic profile. Care within a medical home comprised having a personal doctor/nurse, a usual place for care, effective care coordination, family-centered care, and getting referrals when needed. Gestational age and neonatal follow-up clinic attendance were abstracted from the medical record. The Bayley Scales of Infant and Toddler Development, Third Edition assessed developmental status. Log-binomial regression examined factors related to receiving care within a medical home.

Results

Fifty-three percent (n = 107) of the children received care within a medical home. Low socioeconomic status (young caregiver: risk ratio [RR] = 0.73; 95% CI 0.55, 0.97; low education: RR= 0.69; 95% CI 0.49, 0.98) and delayed language (RR = 0.63; 95% CI 0.42, 0.95) were associated with a lower likelihood of receiving care within a medical home. Degree of prematurity and neonatal clinic follow-up participation were unrelated to receipt of care within a medical home.

Conclusions

Receipt of care within a medical home was lacking for nearly one-half of preterm toddlers, especially those with lower socioeconomic status and poorer developmental status. Discharge from a neonatal intensive care unit may be an optimal time to facilitate access to a primary care medical home and establish continuity of care.

Trial registration

ClinicalTrials.gov: NCT01576783.

Le texte complet de cet article est disponible en PDF.

Keywords : medical home, prematurity, toddlerhood, children with special healthcare needs

Abbreviations : Bayley-III, CSHCN, NICU, NSCH, SES


Plan


 Supported by grant R40MC28316 from the US Health Resources and Services Administration Maternal and Child Health Field–initiated Innovative Research Studies Program, grant 12-FY14-171 from the March of Dimes, a grant from the Allen Foundation, a grant from Cures Within Reach, grant UL1TR001070 from the National Center for Advancing Translational Sciences/National Institutes of Health, and internal support from The Research Institute at Nationwide Children's Hospital. This information or content and conclusions are those of the authors and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government, or the other study supporters. The authors declare no conflicts of interest.


© 2018  Elsevier Inc. Tous droits réservés.
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