IHAE-Qol: Specific Health-Related Quality Of Life (HRQoL) Questionnaire In Hereditary Angioedema Due To C1 Inhibitor Deficiency (HAE-C1INH) - 24/01/14
Doi : 10.1016/j.jaci.2013.12.145
Nieves Prior, Dr.MD 1, Eduardo Remor, Prof. 2, Elia Pérez-Fernández, MSc 3, Carmen Gómez-Traseira, Dr.MD 4, Magdalena Julia Caminoa, Dr.MD 4, Francisco Gayá 5, Werner Aberer, Prof.MD 6, Olga Melcina Barrera, Dr.MD 7, Stephen D. Betschel, Dr.MD 8, Laurence Bouillet, Prof.MD, PhD 9, Anette Bygum, Prof.MD 10, Henriette Farkas, MD, PhD, DSc 11, Anete S. Grumach, Dr. 12, Vesna Grivcheva-Panovska, Dr.MD, PhD 13, Marcel Levi, Dr.MD 14, Hilary Longhurst, Dr.MD 15, Alejandro Malbran, Dr.MD 16, Dumitru Moldovan, Dr.MD, PhD 17, Gregor Porebski, Dr.MD 18, Avner Reshef, Dr.MD 19, Petra Staubach, Dr.MD 20, Andrea Zanichelli, Dr.MD 21, Yu-xiang Zhi, Dr.MD 22, Teresa Caballero, Dr.MD, PhD 4, 23
1 Hospital Universitario Severo Ochoa, Madrid, Spain
2 Psychology Faculty, Universidad Autonoma, Madrid, Spain
3 Hospital Universitario Fundación Alcorcón, Madrid, Spain
4 Allergy Department, Hospital La Paz Institute for Health Research (IdiPaz), Madrid, Spain
5 Research Unit, Hospital La Paz Institute for Health Research (IdiPaz), Madrid, Spain
6 Department of Dermatology and Venereology, Medical University of Graz, Graz, Austria
7 Institute of Pneumology and Allergy. San Fernando's Hospital, Panama City, Panama
8 University of Toronto, Division of Clinical Immunology and Allergy, Toronto, ON, Canada
9 National Reference Centre for Angioedema, Internal Medicine Department, Grenoble University Hospital, Grenoble, France
10 Denmark HAE Centre, Department of Dermatology and Allergy Centre, Odense University Hospital, Odense, Denmark
11 Hungarian HAE Center, 3rd Department of Internal Medicine, Semmelweis University, Budapest, Hungary
12 Department of Dermatology, School of Medicine, University of Sao Paulo, Sao Paulo, Brazil
13 Unit of Allergology and Clinical Immunology. Department of Dermatology. Medicine School University Sts Cyril and Methodius, Skopje, Macedonia
14 Department of Internal Medicine, Academic Medical Center, University of Amsterdam., Amsterdam, Netherlands
15 Barts Health NHS Trust, London, United Kingdom
16 British Hospital of Buenos Aires, Buenos Aires, Argentina
17 Department of Allergology–Immunology, Mures County Hospital, Tirgu-Mures, Romania
18 Department of Clinical and Environmental Allergology, Jagiellonian University, Krakow, Poland
19 Allergy, Clinical Immunology & Angioedema Unit, Chaim Sheba Medical Center, Tel Hashomer, Israel
20 Department of Dermatology, University Medical Center, University of Mainz, Mainz, Germany
21 Internal Medicine Department, Luigi Sacco Hospital, Milan, Italy
22 Peking Union Medical College Hospital, Beijing, China
23 Biomedical Research Network on Rare Diseases (CIBERER, U754), Madrid, Spain
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© 2014
Publié par Elsevier Masson SAS.
Vol 133 - N° 2S
P. AB33 - février 2014 Retour au numéro
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